Protect Medicaid

Legislators in both the US Senate and US House of Representatives are expected to review legislation that may include severe Medicaid cuts. Medicaid is the largest insurance provider in the country and the single most important funding source for the support services that Americans with intellectual and/or developmental disabilities (I/DD) and their families need to lead healthy, dignified, and meaningful lives in our communities.

The New Jersey Council on Developmental Disabilities is deeply concerned with reports of efforts in Washington, DC that will negatively impact Medicaid funding. Of great concern is the fear and anxiety generated by this speculation. We seek to educate and inform our legislators and policymakers about the importance and the need for the continuation of Medicaid funding at present levels for people with intellectual and/or developmental disabilities.

Protect Medicaid-Contact Your Representatives

Contact your representative to share the importance of Medicaid to your well-being and/or the well-being of a loved one with developmental disabilities. Call today to share your story and fight to protect Medicaid: 866-426-2631.

“A brief call to your representative could make a huge difference. Thank you in advance for your help.”

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  • Subscribe to receive a weekly email on Monday mornings about what is going on with Medicaid and what events are coming up to protect it or better prepare you to fight for it.

Upcoming Protect Medicaid Events

  • 3/26: Telephone Town Hall Congressman Tom Kean will host a telephone town hall on Wednesday, March 26th at 6:30pm. He will discuss recent work in Congress and answer questions directly from constituents during the Town Hall.​​ Click here to find more information.
  • 3/27: Town Hall Congressman Donald Norcross will hold a town hall in the gym at Gloucester City High School from 6:00 pm to 8:00 pm on March 27th.​ Click here to find more information.

It is especially important to weigh in with NJ’s Republican federal legislators: Reps. Chris Smith, Thomas Kean Jr. and Jeff Van Drew!

Printed materials, sample letters, contact information for legislators, and more are being provided to assist you in making your voice and story heard.

For additional assistance, please feel free to contact NJCDD at 800 792-2258, Option 7.

Please email robert.titus@njcdd.org if you require any printed material in another language.

Take Action

Senator Andy Kim

Senator Cory Booker

To find your Representative, enter your home address

Find your Representative

Congressman Donald Norcross (District 1)

Congressman  Jeff Van Drew (District 2)

  • Washington, DC Office: 202-225-6572
  • Northfield Office: 609-625-5008
  • Email: https://vandrew.house.gov
  • X @JeffVanDrew
  • Facebook: http://www.facebook.com/JeffVanDrew

Congressman Herb Conaway (District 3)

  • Washington, DC Office: (202) 225-4765
  • Email: https://conaway.house.gov
  • X@HerbConaway
  • Facebook: http://www.facebook.com/HerbConaway

Congressman Chris Smith (District 4)

  • Washinton, DC Office: 202-225-3765
  • Toms River Office: 732-504-0567
  • Email: https://chrissmith.house.gov
  • X @RepChrisSmith
  • Facebook: http://www.facebook.com/RepChrisSmith

Congressman Josh Gottheimer (District 5)

Congressman Thomas Kean Jr. (District 7)

Congressman Rob Menendez (District 8)

Congresswoman Nellie Pou (District 9)

Congressman LaMonica McIver (District 10)

Congressman Mikie Sherrill (District 11)

  • Washington, DC Office: 202-225-5034
  • Livingston Office: 973-526-5668
  • Email: https://sherrill.house.gov/contact
  • Twitter@RepSherrill
  • Facebook: https://www.facebook.com/Sherrill

Congresswoman Bonnie Watson Coleman (District 12)

The NJCDD is collecting testimonials and personal stories about how cuts to Medicaid would affect you and your family, which we will be sending to our elected representatives.  Email us at njcdd@njcdd.org to get involved!

Medicaid-Storytelling-tool

Sharing Your Story: A Guide to Medicaid Advocacy

Medicaid provides funding for services that help millions of people with disabilities and their families across the country. This guide has information to help you share your lived experience with policymakers so they understand the importance of Medicaid and the services it provides to people with disabilities. In the guide, you will find information about how Medicaid works and commonly proposed threats, along with tips for sharing your story and a worksheet to help you plan your advocacy

message.

Publication cover text reads, "Sharing Your Story: A Guide to Medicaid Advocacy"

Download guide – English (PDF)
Download guide – Spanish (PDF)
Download guide – Portuguese (PDF)
Download guide – Chinese (PDF)
Download guide – Japanese (PDF)
Download guide – Tagalog (PDF)
Download guide – Gujarati (PDF)
Limited quantities are available in hard copy format through the Publications Order Form.

 

For People with Disabilities

Hi, my name is (your name) and I am your constituent.

I live in (your city/town) and I have a disability.

I need (Legislator’s Name) to know that Medicaid is very important to me. My Medicaid provides me with (list what you get from Medicaid – As examples, you might say: physical therapy, caregiver to help dress/bathe/eat, supported employment, medical equipment…).

I don’t know what I would do if my Medicaid was cut or reduced in any way. I might have to move into an institutional setting to receive the care I need since any cuts to Medicaid would make it very hard to get care in the community.  I want to live, work, and receive care in my community.

I am a very concerned that Per Capita Caps, which limit funding to states, will mean that I won’t have my Medicaid or get less support through my Medicaid in the future.

Please tell (Legislator’s Name) to protect my Medicaid. Medicaid is my lifeline for living in the community.

Thank you,
(Your Name)

Download Script

For Family Members/Friends

Hi, my name is (your name) and I am your constituent.

I live in (your city/town). I want to tell you about (name of your family member/friend) who has a disability. They rely on Medicaid to make sure they can live in the community and not in an institution.

I need (Legislator’s Name) and his/her Health Staff Person to know that Medicaid is very important to me. (Name of Family Member/Friend)’s Medicaid provides them with (list what your family/friend gets from Medicaid – As examples, you might say: physical therapy, caregiver to help dress/bathe/eat, supported employment, medical equipment, respite services…).

I don’t know what we would do if their Medicaid was cut or reduced in any way. I am very concerned they might be forced into an institutional setting to receive the care they need since any cuts to Medicaid would make it very hard to receive care in the community.

I am a very concerned that Per Capita Caps, which would limit funding to states, will mean that they won’t be able to live in the community because their Medicaid will be cut or reduced.

Please tell (Legislator’s Name) to protect Medicaid. Medicaid is the lifeline of New Jerseyans with disabilities living in the community.

Thank you,
(Your name)

Download Script

Below are some Sample Letters that you can send to your federal legislator or media website

Letter from a Family Member #1
Letter from a Family Member #2

Letter from a Person with Disabilities #1
Letter from a Person with Disabilities #2

Medicaid Storytelling Grid (Thanks to Wisconsin DD Council)

For additional information on the Medicaid cuts proposed by Congress and the President, download our Medicaid Fact Sheet and the NJCDD’s Statement Regarding Medicaid and the Affordable Care Act.  You can then print these out to share with members of your community, or fax or email them to your representatives

For a list of the News Outlets closest to you, visit:
http://www.njpa.org/njpa/member_newspapers/county_map.html

Protect Medicaid Press Conference Photos

On March 3, 2025, Dorothy (Dotty) Blakeslee, Chair of the Statewide Regional Family Support Planning Council, attended Senator Cory Booker’s Protect Medicaid press conference. In the first image, Dotty (center) was photographed with Senate Majority Leader Teresa Ruiz of District 29 and Newark Councilman Luis Quintana. In the second photo, Dotty (to the right of Senator Booker) was photographed with a group of press conference attendees.

Save Medicaid

Save Medicaid

Protect Medicaid Advocacy Videos